Hi:? First let me welcome you to the club that nobody wants to join as we say, but you came to the right place.? You will start to understand this whole disease and even find comfort in knowing about how well these treatments are working for all of us.? My second thing is that I always tell everyone to get a second opinion to confirm everything the? first doctor has told you.
??? We have people on here from all over including your area I think.? I myself live in N.J.? My other advice is to be sure that the doctor you are seeing treats numerous cases of CML a year so you know that he or she knows what they are talking about.? Saying its not even considered a cancer was probably not the right statement, but most doctors will tell you that if you had to get Leukemia that you got the best one.? CML is very treatable.
?? Please post any questions you have so we can get to know you.? We have some very knowledgeable people on here who will give you expert advice.
? I was diagnosed in 1998, and there were no TKI drugs.? I did not go on Gleevec until 2000, and I am still on the same dose all these years later.? My Leukemia has been undetectable now for 9 years.? Gleevec is made by the same drug company as Tasigna. Gleevec was the first and then other drugs were developed.
? I will not go into a whole bunch of detail to confuse you.? I will say that CML is not a death sentence which is what everyone fears.? You will get to see your twins grow,and enjoy all the different aspects of their life.
The biggest thing everyone complains about is the side effects of their TKI drug, but every drug has some type of side effect.? I have always felt that what I go through has been worth it.? I was diagnosed the week before Christmas in 1998, and thought this is my last holiday with family.? Now I will be celebrating Christmas #14 this year.
? So glad you posted and joined us.
Susan 61
Source: http://community.lls.org/thread/16487
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